News and resources

Our research and reports

Posted on October 30 2024 at 12:19

Today’s Challenge, Tomorrow’s Hope (July 2025). This report details our key findings from the My Neuro Survey for Scotland, the largest patient experience survey for people affected by neurological conditions, including friends and family, in the UK. Our findings show that:
1. Two out of three adults say life is difficult to cope with and their condition has an impact on their mental health
2. Four out of five of children with a neurological condition experience frustration and anger
3. Over half of adults feel unsupported by the healthcare system
4. Interactions with healthcare professionals have improved for those with the better understood conditions
5. The economic impact of neurological conditions is substantial
6. Carers are at breaking point with over half unable to access mental health support

Our members’ work

Posted on October 30 2024 at 11:47

Members of the Neurological Alliance of Scotland are extremely active. Take a look at some of the reports, projects and other items of interest that they have produced recently.

Please contact us if you want to share your organisation’s work here.

Where there are policies or strategic plans that are pan-neurological, the Neurological Alliance of Scotland works with our membership through our Policy Group to create a response. As and when we submit a consultation response, we will put the information up on this page here.

In July 2025, NAoS submitted a response to the Long Term Conditions Framework consultation. This response was co-written with charity members. You can read our response here: Neurological Alliance of Scotland, Long Term Conditions Framework Consultation Response
In June 2025, NAoS recieved a response from Ashley Dalton MP, Parliamentary Under-Secretary of State for Public Health and Prevention, in reply to our open letter calling for greater investment into research on neurological conditions, co-signed by 74 member charities. You can read the response here.
In March 2025, NAoS an open letter to the Secretary of State for Science, Innovation and Technology, Rt Hon Peter Kyle MP, endorsed by 74 member organisations and the four UK Alliances, calling for greater investment into research on neurological conditions. You can read our letter here.
In February 2025, NAoS submitted an open letter to the Cabinet Secretary for Health and Social Care, Neil Gray MSP, regarding our concerns over the loss of a neurology framework for Scotland. The letter was endorsed by 34 member charities. You can read our letter here.
In February 2025, NAoS submitted a recommendation to the UK Spending Review on behalf of the Neurological Alliances of Scotland, England, Wales and Northern Ireland outlining the disparity in funding for neurological condition research and calling for the UK Government to prioritise neurological conditions in research investment. You can read our submission here.
In January 2025, NAoS submitted a detailed response to the Scottish Government’s Palliative Care Matters for All: strategy consultation. You can read our response here.
In September 2024 Alice Struthers, Programme Director, published a blog about the Minister’s response to NAoS member questions on the National Care Service. You can read the response here.

Neurological Care and Support Framework 2020-2025

Posted on July 30 2021 at 10:48

This is an exciting time for the neurological community in Scotland. Scotland’s first five year plan for neurological conditions - Neurological Care and Support in Scotland: A Framework for Action 2020 - 2025 - was published in December 2019.