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The Neurological Alliance of Scotland is an umbrella body of organisations that represent people with a neurological condition and those who support them. We know that by coming together we can ensure that the issues facing people living with neurological conditions are understood, and that services are improved.

All not-for-profit organisations working in the interests of people affected by neurological conditions in Scotland are welcome to join the Alliance.

Become a member

 

Our current members

Action for ME

We take action to end the ignorance, injustice and neglect experienced by people with M.E.. We support people with M.E. of all ages across the UK, and their families, to access information, care and support that meets their needs, by phone, email and online. We also co-lead DecodeME, the world's largest DNA M.E./CFS research study

www.actionforme.org.uk

Ataxia UK

People with ataxia deserve care, understanding and a cure. We raise funds for medical research into finding treatments and a cure for ataxia - until we do, we will give support, advice and information for anyone affected.

www.ataxia.org.uk

Brain Tumour Action

Brain Tumour Action promotes a range of services and activities. Our aim is to support people affected by brain tumours, whether directly or indirectly, and to improve treatments through training and research. Ultimately, we look to the day when brain tumours become a controllable, or curable, condition for everyone.

Brainstrust

We believe in a world where people with a brain tumour and their loved ones are involved, resourced, confident and connected. They are living the life they want, to the best of their potential, because they are people first, and patients and carers second. We provide personalised support and build resources that help people with a brain tumour and their loved ones live the life they want after diagnosis. We work with people in the clinical setting to secure the best possible care for people with a brain tumour and we campaign to solve real issues, because we understand what challenges people with a brain tumour face. Our support is available to everybody affected by any type of brain tumour. Find out more about the ways we can help you thrive when living with and beyond a brain tumour below.

brainstrust.org.uk

Cerebal Palsy Scotland

Cerebral Palsy Scotland is the only organisation in Scotland dedicated to supporting people with CP regardless of age or location. In Scotland, there is not enough specialist support and services for people with cerebral palsy and their families. Cerebral Palsy Scotland exists to close this gap. For twenty-five years, providing specialist intensive therapy using the Bobath concept has been at the heart of what we do. Alongside individual therapy for both children and adults, we bring the CP community together through organising group activities for a range of ages and stages, and work to share CP-specific information both online and face-to-face. Collectively, our services help people with CP build skills, knowledge, confidence and relationships and make the most of their abilities.

cerebralpalsyscotland.org.uk

Child Brain Injury Trust

The Child Brain Injury Trust is the leading voluntary sector organisation providing emotional and practical support, information and learning opportunities for families and professionals affected by childhood acquired brain injury across the UK.

childbraininjurytrust.org.uk

Dochas Fund

Do you look after a relative, partner or friend who needs support because of age, physical or learning disability or illness including mental health? The Dochas Carers Centre is here to support you by providing information and guidance. You can call in person, phone us, request a home visit or make an appointment to speak with one of our staff. We cover Mid Argyll, Kintyre, Islay and Jura. Our services include carer support, counselling, befriending, carer information and training, funding for short breaks. All service is free for unpaid carers.

www.dochasfund.org.uk

Dystonia UK (registered as the Dystonia Society)

Dystonia UK is children and adults with dystonia, carers and clinicians, fundraisers and families, medical professionals and our amazing members and supporters, all working side by side.

www.dystonia.org.uk

Epilepsy Connections

Epilepsy Connections provides services that support people with epilepsy, their family, friends and carers, as well as the professionals working with them in the Greater Glasgow & Clyde, Forth Valley, and Ayrshire and Arran health board areas

www.epilepsyconnections.org.uk

Epilepsy Scotland

Epilepsy affects 55,000 people in Scotland. We are here to support anyone with this common serious neurological condition, their families, carers and employers. We campaign for improved healthcare and an end to stigma, we influence policies that will affect the health, educational and social welfare of people with epilepsy and provide quality information, support and wellbeing services.

www.epilepsyscotland.org.uk

FND Hope UK

FND Hope UK is part of the first and only global patient-led charity for people with Functional Neurological Disorder. Originating as a grassroots campaign, it uncovers the hidden world of FND and empowers those affected to live their best possible life.

fndhope.org

Funding Neuro

Our aim is to accelerate the development of new treatments for many of the most serious neurological conditions.

www.fundingneuro.com

Lanarkshire Epilepsy

The aim of the charity is to provide support, to raise awareness and increase understanding of the effects of epilepsy, through a wide range of activities, including individual and group support, counselling, advocacy and recreational activities. We also seek opportunities to provide awareness-raising information within our community, believing that greater understanding will assist people in living a fuller life.

www.lanarkshireepilepsysupport.org.uk

ME Action

#MEAction Scotland is a volunteer-led group determined to raise awareness of ME in Scotland and campaign for health equality for the patient community. We are an affiliate of #MEAction UK

www.meaction.net

ME Association

We provide information, support and practical advice for people, families and carers affected by M.E. (Myalgic Encephalopathy), Chronic Fatigue Syndrome (CFS) and Post Viral Fatigue Syndrome (PVFS). We also fund and support research, and offer education and training.

meassociation.org.uk

MND Scotland

MND Scotland is the leading charity in Scotland providing care and support to people affected by Motor Neurone Disease (MND), as well as funding vital research into finding a cure.

www.mndscotland.org.uk

MS Therapy Centre Lothian

We deliver a comprehensive range of co-ordinated, person-centred, self-management support services and therapies for people living with MS and other long-term health conditions in a community- based health and wellbeing centre.

www.mstc-lothian.org.uk

MS Therapy Centre Tayside

A self-help group, supporting people affected by Multiple Sclerosis. With no Government or NHS support, we rely on donations and fund raising by members, their families and friends, businesses and organisations to raise the funds we need to continue. Without these generous efforts we would not be able to continue to offer our worthwhile treatments. Established in 1982, Dundee was the very first MS therapy centre offering Oxygen therapy. (Oxygen administered via a mask while under pressure in a decompression chamber). Our client base covers not only Tayside but extends into Fife. There are now over 64 similar centres around the UK, all providing support to those living with MS. Other therapies we offer are: Physiotherapy, Acupuncture, Chiropody, Aromatherapy, Reflexology and Swimming, Physio Led Exercise classes & Tai Chi Largely a therapy centre for people with MS, Oxygen therapy is also used by people with sports injuries, M.E., circulatory problems, to name but a few. At Peddie Street we have an excellent team of paid employees, health professionals and many helpful volunteers.

www.mstherapytayside.com

MS Trust

The MS Trust is here for everyone affected by MS, from the moment of diagnosis and throughout your journey. We're here for you today, tomorrow and every day after, making sure a life with MS isn't a life defined by MS

www.mstrust.org.uk

MSA Trust

The Multiple System Atrophy Trust is the UK and the Republic of Ireland's leading charity supporting people affected by multiple system atrophy (MSA) – a rare neurological disease with no known cause or cure.

www.msatrust.org.uk

MSNTC

Multiple Sclerosis National Therapy Centres (MSNTC) is the umbrella body for a diverse range of therapy centres around the UK and Channel Islands. We currently have 51 member centres which vary hugely in size, client numbers and service provision. We work to support the continuing development of our Member Centres, and all of our work is directed by the Centres. We provide a common voice at a national level, to promote the work of our Centres, raise awareness, and be part of broader discussions affecting Centres and people living with MS.

www.msntc.org.uk

Multiple Sclerosis Centre, Mid Argyll

Multiple Sclerosis Centre, Mid Argyll supports families affected by long term conditions across Mid Argyll, Kintyre, Islay and Jura.

www.msargyll.com

Muscular Dystrophy UK

Muscular Dystrophy UK is working with individuals, families and professionals to bring forward the day when there are effective treatments available for all muscle-wasting conditions.

www.musculardystrophyuk.org

My Aware

Myaware is the only organisation in the UK that supports those who have myasthenia. Myaware raises awareness of myasthenia, as it is a rare condition, we provide support for those who have myasthenia and their families whilst offering advice and tips for living with the condition. We campaign for better medical services for people with myasthenia and work to inform medical professionals. We fund research for new therapies to reduce the impact of the conditions and ultimately find a cure. Members of myaware have full access to a wide range of support services and events including our specialist benefits advisor and telephone or Skype counsellor.

www.myaware.org

Neuro Central

Neuro Central will be a base where people living with neurological conditions can get help, support and advice in a friendly, relaxed environment, so nobody has to feel alone!

neurocentral.co.uk

Parkinson's UK

We are Parkinson's UK Scotland. Powered by people. Funded by you. Improving life for everyone affected by Parkinson's. Together we'll find a cure.

www.parkinsons.org.uk

PSP Association

PSPA is the only UK charity dedicated to improving the lives of people living with PSP & CBD. We provide information and support, whilst funding research into treatment and ultimately a cure

pspassociation.org.uk

QNIS

We are a charitable organisation promoting excellence in community nursing to improve the health and well-being of the people of Scotland.

www.qnis.org.uk

Revive MS Support

As a Centre of Excellence, we aim to be the main driver of new and improved services setting new standards for MS care across Scotland so that our clients' resilience and wellbeing are maximised.

www.revivemssupport.org.uk

Scottish Huntington's Association

Scottish Huntington's Association (SHA) is a Scottish charity that was established by families living with Huntington's disease (HD) in the late 1980s. Experiencing directly the dearth of services available to them, the organisation pursued the goal of setting up specialist family support services and this ultimately blossomed into the development of an extensive network of specialist services.

hdscotland.org

Scottish Post Polio Network

To ensure all Polio survivors in Scotland have access to appropriate Health and Social Care: and the support to maintain independence and live their lives in dignity.

sppn.org.uk

Spina Bifida Hydrocephalus Scotland

Spina Bifida Hydrocephalus Scotland seeks to increase public awareness and understanding of individuals with spina bifida and / or hydrocephalus and allied conditions. It aims to support all those affected, to identify their needs and empower them to make informed choices and decisions

www.sbhscotland.org.uk

Stroke Association

We're here to support people to rebuild their lives after stroke. We believe everyone deserves to live the best life they can after stroke. We provide specialist support, fund critical research and campaign to make sure people affected by stroke get the very best care and support to rebuild their lives. Rebuilding lives after a stroke is a team effort. It takes the determination of stroke survivors and carers, the generosity of supporters and the dedication of the healthcare and research communities to get there

www.stroke.org.uk

Sue Ryder Care

We support people who are living with a terminal illness, a neurological condition or who have lost a loved one - we are there when it matters.

www.sueryder.org

The Migraine Trust

The Migraine Trust is the lead charity supporting the 10m people affected by migraine in the UK. We offer a range of support and information services, both online and face to face, as well as funding research into the condition and campaigning for improved diagosis, treatment and care.

www.migrainetrust.org

The Oxygen Works

The Oxygen Works provides oxygen therapy and personalised support and treatments to people living in the Scottish Highlands with a wide range of medical conditions to improve their health and well-being.

www.theoxygenworks.com

The Scottish Centre for Children with Motor Impairments

The Scottish Centre for Children with Motor Impairments works with families and partners to deliver integrated learning, therapy and care for children in Scotland, we support the enablement of children affected by motor impairments to achieve their potential and fulfil their ambitions. We specialise in providing support for children and their families affected by acquired brain injury, complex and multiple learning disability and rare congenital and genetic disorders. We have particular expertise in working with children and supporting families affected by Cerebral Palsy and Rett Syndrome. We offer integrated learning, care and therapy for children from birth to 19 years. Our services include an independent school, nursery services, short term intensive residential programmes, an assessment service, group programmes and individual child and family support. Services are provided on site at our Cumbernauld base, in family homes, at partner facilities throughout Scotland and through video link practitioner directed therapy sessions. In addition to direct support to families, the Centre also offers partnership working, support and guidance for practitioners working with children and families affected by childhood disability.

www.craighalbert.org.uk

Thistle Foundation

Thistle is a health and wellbeing charity providing support to people living with long-term health conditions and disabilities. Thistle is a non-condition specific organisation and provides self-management support to help people live life on their own terms. Thistle’s approach is person centred, outcomes focused and strength based. We focus on prevention, early intervention, self-management and support people to look after and improve their own health and wellbeing. We work with people by focusing on what matters to them – seeing them as partners who are fully involved in decision-making around the care and support they need to live well on their terms. Thistle supports people to make transformative life changes from being bleak, lonely, and consumed with anxiety, to lives of confidence, resilience and social connection. We aim to ensure that a health crisis does not become a life crisis

www.thistle.org.uk

Tourette Scotland

Tourette Scotland are the only charity in Scotland dedicated to supporting adults, children and families living with Tourette Syndrome and its co-existing conditions. We offer support groups across Scotland, outreach, training for schools, colleges and workplaces and online support via our social media pages and website.

www.tourettescotland.org

Transverse Myelitis Scotland Support Group

Established in 2003, we have more than 100 members in Scotland and meet quarterly in different venues throughout the country. During the present climate we have Zoom meetings. Our group is affiliated to the SRNA and also the TM Society. Whether you have Transverse Myelitis, ADEM, AFM, MOGAD, NMOSD, Optic Neuritis, or any related conditions, sharing experiences with others living with the condition helps you to feel less isolated so you are welcome to join us.

www.wearesrna.org

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