National Care Service: Does anyone know what it is?
By Alice Struthers, Programme Director of The Neurological Alliance of Scotland
Two years down the road from the introduction of the National Care Service Bill (Scotland) to Scottish Parliament, it feels like there are as many questions unanswered as progress made. Does anyone really understand what the National Care Service is, what it includes and how it will be funded? Does anyone think that this complete structural upheaval will lead to a genuinely positive, human-rights based and dignified change in the way social care is delivered in Scotland? Will Anne’s law be implemented and protected? Will carers have rights to breaks? Will children benefit from clearer, kinder and fairer social care services? Will children’s services even be part of the NCS remit?
PSPA launch new web page for young people
NAoS member, PSPA has launched a new web page to help young people who have family members with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD) to gain a better understanding of the conditions.
The information was developed in collaboration with a Young Person’s Advisory Group. This group ensured the information was pitched at the right level and answered all the questions young people might have about the conditions their family members are living with.
Share your experiences and help improve neuro services: fill out #MyNeuroSurvey
Everyone deserves access to the right care, treatment and support at the right time, no matter who you are or where you live. But too often this isn’t the case.
The next iteration of the My Neuro Survey was launched on 22 July 2024.
This is the largest patient experience survey of people affected by neurological conditions, including friends and family, in the UK.
The last My Neuro Survey saw 834 respondents from Scotland, and, with your help, we are hoping to increase this number to 1,000.
Please share your experiences and help improve services for everyone affected by neurological conditions now...
PSPA #WeCare campaign calls for improved support for carers
NAoS member PSPA, is backing calls to improve the support available for unpaid carers.
To do this, PSPA, the only UK charity dedicated to supporting people living with rare neuro-degenerative conditions called Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD), has launched a new awareness campaign called #WeCare.
Mental Health is Casualty of Poor Coordination and Funding between Health Service and Third Sector
Lack of access to mental health services for people affected by neurological conditions is profoundly impacting the wellbeing of people across Scotland. Our report released on 13 May 2024 to coincide with Mental Health Awareness Week shows how the underfunded neurological third sector is struggling to cope with the volume and intensity of demand for mental health support amongst those affected by neurological conditions who cannot get support from the NHS.
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