It’s been an incredible 20 years!
Now that we’re 20 years old, we’d like to tell you a little bit about our story. It took a while to gather a timeline together of our history and so this blog is one way we can create a public record of our achievements.
The Neurological Alliance of Scotland formed in 2004 with just three member charities, the MS Society Scotland, Parkinson’s UK and MND Scotland. Over the last 20 years we have worked together to co-ordinate priorities amongst neurological charities and to amplify the voices of people living with neurological conditions. We now stand at 54 member charities who support a wide range neurological conditions. We have achieved a huge amount on a tiny budget and we want to celebrate this in this blog.
The Migraine Trust launch new report for Migraine Awareness Week
Monday 23 September is the start of Migraine Awareness Week and The Migraine Trust is launching its latest report looking at the experience of living with migraine.
Migraine hurts in many ways beyond the physical pain - The Migraine Trust
National Care Service: Does anyone know what it is?
By Alice Struthers, Programme Director of The Neurological Alliance of Scotland
Two years down the road from the introduction of the National Care Service Bill (Scotland) to Scottish Parliament, it feels like there are as many questions unanswered as progress made. Does anyone really understand what the National Care Service is, what it includes and how it will be funded? Does anyone think that this complete structural upheaval will lead to a genuinely positive, human-rights based and dignified change in the way social care is delivered in Scotland? Will Anne’s law be implemented and protected? Will carers have rights to breaks? Will children benefit from clearer, kinder and fairer social care services? Will children’s services even be part of the NCS remit?
PSPA launch new web page for young people
NAoS member, PSPA has launched a new web page to help young people who have family members with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD) to gain a better understanding of the conditions.
The information was developed in collaboration with a Young Person’s Advisory Group. This group ensured the information was pitched at the right level and answered all the questions young people might have about the conditions their family members are living with.
Share your experiences and help improve neuro services: fill out #MyNeuroSurvey
Everyone deserves access to the right care, treatment and support at the right time, no matter who you are or where you live. But too often this isn’t the case.
The next iteration of the My Neuro Survey was launched on 22 July 2024.
This is the largest patient experience survey of people affected by neurological conditions, including friends and family, in the UK.
The last My Neuro Survey saw 834 respondents from Scotland, and, with your help, we are hoping to increase this number to 1,000.
Please share your experiences and help improve services for everyone affected by neurological conditions now...
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