Neurological Alliance of Scotland | Blog

Update from the Long Term Conditions Framework Roundtable Event

Hester Lee — Mon, 01 Dec 2025 15:06:00 +0000

The Neurological Alliance of Scotland attended the Long Term Conditions Framework roundtable with the Minister for Public Health and Women’s Health, on Thursday 27th November. Along with around 30 other charities we participated in a full and frank discussion about the look and feel of what is being planned.

‘Action needed now to avert health and social care crisis in Scotland’, sector leaders tell First Minister in open letter.

Hester Lee — Wed, 20 Aug 2025 13:55:00 +0100

The Neurological Alliance of Scotland joined 240 health and social care leaders in co-signing the ALLIANCE and the Coalition of Care and Support Providers in Scotland’s open letter to the First Minister, calling for immediate steps to address the current crisis threatening the sector.

New report: Scotland’s ‘invisible’ patients and carers ‘falling between the cracks’ in health service

Hester Lee — Wed, 09 Jul 2025 09:18:00 +0100

Patients with neurological conditions and their carers are “falling between the cracks” and many do not feel supported by Scotland’s health system, according to a major new report. The survey by the Neurological Alliance of Scotland reveals that two out of three adults find life difficult to cope with and their condition has an impact on their mental health. Authors have also warned that carers are at “breaking point”, with the Carers’ Trust describing people affected and those supporting them as “often invisible”. Over half of adults feel unsupported by the healthcare system, while four out of five of children with a neurological condition experience frustration and anger.

First UK Neuro Forum meeting begins to identify shared challenges in neurological care

Hester Lee — Thu, 13 Mar 2025 16:48:00 +0000

This first ever UK Neuro Forum meeting was held this week. The Forum was announced by the UK Government at the end of 2024, following the #BackThe1in6 campaign led by The Neurological Alliance together with The Neurological Alliance of Scotland, Wales Neurological Alliance and the Northern Ireland Neurological Charities Alliance and supported by over 100 organisations and more than 19,000 people.

78 organisations call for urgent investment in neurological research for #BrainAwarenessWeek

Hester Lee — Mon, 10 Mar 2025 14:40:00 +0000

Brain Awareness Week 2025: #InvestInNeuroResearch

Hester Lee — Mon, 17 Feb 2025 15:28:00 +0000

NAoS trustee Claire Stevens speaks at Parkinson’s UK’s PAR-CON

Hester Lee — Thu, 31 Oct 2024 11:52:00 +0000

Article: Prevention of Future Deaths Report issued following death of woman with very severe ME

Hester Lee — Tue, 29 Oct 2024 15:27:00 +0000

It’s been an incredible 20 years!

Hester Lee — Mon, 30 Sep 2024 17:31:00 +0100

The Migraine Trust launch new report for Migraine Awareness Week

Hester Lee — Tue, 17 Sep 2024 16:32:00 +0100

National Care Service: Does anyone know what it is?

Hester Lee — Tue, 17 Sep 2024 10:27:00 +0100

By Alice Struthers, Programme Director of The Neurological Alliance of Scotland

PSPA launch new web page for young people

Hester Lee — Thu, 22 Aug 2024 12:41:00 +0100

Share your experiences and help improve neuro services: fill out #MyNeuroSurvey

Hester Lee — Mon, 05 Aug 2024 15:16:00 +0100

Everyone deserves access to the right care, treatment and support at the right time, no matter who you are or where you live. But too often this isn’t the case.

PSPA #WeCare campaign calls for improved support for carers

Hester Lee — Thu, 30 May 2024 13:19:00 +0100

NAoS member PSPA, is backing calls to improve the support available for unpaid carers.

Mental Health is Casualty of Poor Coordination and Funding between Health Service and Third Sector

Hester Lee — Mon, 13 May 2024 09:50:00 +0100

Lack of access to mental health services for people affected by neurological conditions is profoundly impacting the wellbeing of people across Scotland. Our report released on 13 May 2024 to coincide with Mental Health Awareness Week shows how the underfunded neurological third sector is struggling to cope with the volume and intensity of demand for mental health support amongst those affected by neurological conditions who cannot get support from the NHS.

MS Unfiltered: Joint MS campaign for MS Awareness Week

Hester Lee — Thu, 22 Feb 2024 15:18:00 +0000

This MS Awareness Week (22-28 April 2024), NAoS members the MS Society, the MS Trust and Neuro Therapy Network have teamed up with MS charities across the UK to launch their MS Unfiltered campaign.

Parkinson's UK: Scotland Can't Wait Report (2024)

Hester Lee — Tue, 06 Feb 2024 08:52:00 +0000

Parkinson's UK Scotland has launched a new major report highlighting the urgent need for more Parkinson's nurses in Scotland.

Their report, Scotland 'Can’t Wait', identifies three priority areas for action to improve the care and services that people with Parkinson’s and their partners, families and friends depend on in Scotland:

NeuroLifeNow September-October 2023 Insight Report

Hester Lee — Sun, 04 Feb 2024 09:45:00 +0000

NeuroLifeNow, a research arm of NAoS' member the Brain and Spine Foundation, has released its September- October insights report. This report was drawn from a series of surveys that looked at the impact of NHS strikes, concerns going into winter, and the general impact of neurological conditions on a person's life.

Read a summary or the full report here:

UK Disability History Month: Reflections from our Members

Hester Lee — Thu, 30 Nov 2023 09:00:00 +0000

UK Disability History Month is celebrated from the 16th of November to the 16th of December.

Multiple System Atrophy Trust 2nd MSA Needs Survey Publication

Lorna McGee — Sat, 10 Jun 2023 09:13:00 +0100

Multiple System Atrophy (MSA) is a rare progressive neurological condition that affects adult women and men. It is life limiting and causes problems with movement, balance, and autonomic functions of the body such as bladder and blood pressure control.