News and resources

Our members’ work

Members of the Neurological Alliance of Scotland are extremely active. Take a look at some of the reports, projects and other items of interest that they have produced recently.

Please contact us if you want to share your organisation’s work here.

• The British Polio Fellowship have published their Optimal Clinical Pathway , ?setting out what good treatment, care and support looks like for polio survivors. 
• The Migraine Trust, Migraine hurts in many ways beyond the physical pain report, published September 2024. The Migraine Trust surveyed 2,028 people with the condition and found high numbers report not being believed or taken seriously, including in employment and when accessing healthcare. Despite so many people experiencing migraine, the condition is poorly understood. A key theme throughout the research was migraine being dismissed or invalidated, with many respondents referring to migraine being mischaracterised as ‘just a headache’. 
• Parkinson’s UK: Scotland Can’t Wait report, published January 2024. Their report looks at how well health and social care services are doing for people with Parkinson’s in Scotland. It covers 3 areas which need action: workforce, mental health, and time critical medication. They’ve made more than 26 recommendations for service improvements in Scotland.
• NeuroLifeNow, a research arm of NAoS’ member the Brain and Spine Foundation, has released its September- October insights report. This report was drawn from a series of surveys that looked at the impact of NHS strikes, concerns going into winter, and the general impact of neurological conditions on a person’s life. Read a summary or the full report here: Summary Insights; Full Report Insights
• Epilepsy Scotland, Epilepsy on the Mind report published June 2023
• FND Hope published their 2021 impact report in September 2022 reflecting on the incredible work they have done to support people with FND
• The Migraine Trust published a report called “Dismissed for too long: the impact of migraine on children and young people” in September 2022, to coincide with Migraine Awareness Week
• The MS Society published a report called Neurology Now: The case for a new approach to neurology services, in November 2021
• The Migraine Trust released a report on the impact of underinvestment into Migraine and patchy access to specialist care, at the start of September 2021
• Epilepsy Scotland released an Epilepsy and Covid Lived Experience Report at the end of April 2021
• The Scottish Post Polio Network: Covid Questionnaire results
• Too much to lose - the importance of losing access to community rehabilitation for people with MS, MS Society
• The Stroke Association have recently published a report on the relation between Stroke and Covid-19
• Understanding the impact of covid restrictions on people with CP, Cerebral Palsy Scotland
• National Care Framework for Huntington’s, Scottish Huntington’s Association
• People. Parkinsons. Scotland. What do we know about services and support for people with Parkinson’s in Scotland?, Parkinson’s UK Scotland
• Supporting Wellbeing for People with CP, Bobath Scotland
• Rewrite the Future (update report), Sue Ryder Scotland
• Get it on Time, Parkinson’s UK Scotland
• Impact of COVID-19 on people with Huntington’s Disease, Scottish Huntington’s Association