Important information on coronavirus
Read our new report on the impact of lockdown on people with neurological conditions
On 24 June, we published a new report based on feedback from our member charities about how the coronavirus lockdown is affecting people with neurological conditions in Scotland.
Neurological Voices: Living through lockdown presents hard-hitting data and personal reflections from across the neurological community in Scotland, and calls for action on common issues:
- Recognition of the anxiety experienced by people with neurological conditions and their families at this time
- Coordinated and clear public and patient information
- Meeting people's health needs
- Improved community support
- Information and support for unpaid carers
- Guidance for social care providers
For people with neurological conditions and carers
If you have a neurological condition or care for someone who does you may be concerned about how the COVID-19 coronavirus outbreak will affect you. We are regularly updating our coronavirus information in response to new announcements and events.
Please see our general information on coronavirus for people with a neurological condition and carers. This includes links to sources of condition-specific information and information on handwashing for people whose condition makes this more difficult.
The Scottish Government published new information for people with a neurological condition on 2 April 2020.
On Tuesday 14 April 2020, the Scottish Government opened a free helpline - 0800 111 4000 - for those in the high risk vulnerable group to be able to access practical help with shopping, picking up medications, links to statutory and voluntary sources of help. The helpline operates 9am to 5pm Monday - Friday.
We have also been sent this summary of Scottish supermarkets, outlining the special support available for those in the high risk vulnerable group in each local authority area.
For neurological charities
If you are a charity supporting people with neurological conditions, the coronavirus outbreak will also affect you. We want to help to bring neurological charities together in Scotland at this time.
Please see our information summary for member organisations. This includes information about what we are doing to support neurological charities including details of recent meetings, writing to Ministers and MSPs, and reporting on the issues that are facing the neurological community in Scotland.
It also includes links to sources of emergency funding including the £20m Third Sector Resilience Fund for charities, community groups, social enterprises and voluntary organisations working in Scotland, and the £33m available through the Wellbeing Fund announced on 13 April 2020.
The Association of British Neurologists has published - and is regularly revising - guidance on COVID-19 and neurological conditions.
This is an exciting time for the neurological community in Scotland. Scotland’s first five year plan for neurological conditions - Neurological Care and Support in Scotland: A Framework for Action 2020 - 2025 - was published in December 2019. There is a detailed implementation plan to follow in early 2020, and there are new standards for neurological care in Scotland. Read on for more information.
The Neurological Alliance of Scotland and our member organisations are making sure that the voices and experiences of people living with neurological conditions are heard.
Scottish Government and health and social care bodies
The Neurological Alliance of Scotland represents neurological charities on a range of groups and projects. Some of the most important projects that are happening at the moment are:
National Advisory Committee on Neurological Conditions (NACNC)
This is the Scottish Government’s advisory group on neurological policies. It includes NHS and social care professionals and managers, third sector professionals, people with neurological conditions and carers. The chair and vice chair represent the Alliance on the NACNC.
Neurological Care and Support in Scotland: A Framework for Action 2020 - 2025
This is the Scottish Government’s first ever national action plan to improve the care, treatment and support available to people living with neurological conditions and their carers. The final Framework was published late in 2019, and will be followed by a detailed implementation plan in 2020.
- Read the Framework for Action.
- Read the Neurological Alliance of Scotland's response to the Framework for Action.
- Read the draft plan, which was put out to consultation in 2018.
- Read the the Neurological Alliance of Scotland’s response to the draft Neurological Action Plan.
NHS HIS General Standards on Neurological Care and Support
These Standards were developed by NHS Healthcare Improvement Scotland (HIS). They are a guide for those from health, social care and the third sector who support people living with neurological conditions, to demonstrate that they are delivering high quality services.
The Standards were published in March 2019. Read the Standards.
Scottish Access Collaborative Neurology Specialty Group
This is part of a major collaborative project to sustainably improve NHS waiting times for non-emergency procedures in Scotland. Stephanie Fraser sits on this on behalf of the Alliance.
Managed Service Network (MSN) on Neurosurgery
This body provides the strategic leadership and co-ordinates activities across the four adult and two child neurosurgery units in Scotland to form a single neurosurgery service for Scotland. Tanith Muller and Andy Wynd sit on the Neurosurgery MSNC on behalf of the Alliance.
Our members’ work
Members of the Neurological Alliance of Scotland are extremely active. Take a look at some of the reports, projects and other items of interest that they have produced recently. Please contact us if you want to share your organisation’s work here.
- National Care Framework for Huntington’s, Scottish Huntington’s Association
- People. Parkinsons. Scotland. What do we know about services and support for people with Parkinson’s in Scotland?, Parkinson’s UK Scotland
- Supporting Wellbeing for People with CP, Bobath Scotland
- Rewrite the Future (update report), Sue Ryder Scotland
- Get it on Time, Parkinson's UK Scotland
- Impact of COVID-19 on people with Huntington’s Disease, Scottish Huntington's Association