Last updated - 24 June 2020
As the COVID-19 coronavirus outbreak continues, it is clear that the next few months will be extremely challenging for neurological charities, as well as for the people we support in Scotland.
Issues like fundraising, the health and wellbeing of staff and volunteers, and finding new ways to continue to provide our services are some of the concerns that neurological charities will be facing in the coming weeks and months. At the same time, we will be responding to the huge pressures that coronavirus will place on all the other vital services that people with neurological conditions and their families need.
The Neurological Alliance of Scotland wants to bring neurological charities together so that we can share information and support each other in these rapidly changing times.
This includes advice on handwashing for people with conditions that can make it more difficult as well as links to condition specific resources. Please email us if you would like to suggest a link to condition-specific information we have not included.
The Scottish Government published new information for people with a neurological condition on 2 April 2020.
As of 24 June 2020, the advice for everyone living in Scotland remains to stay at home as much as possible, although it is now permitted to meet with a maximum of eight people from up to two other households outside the home and adults living alone or as the lone adult with children under 18 can form an extended household with other families.
People who are in the high risk vulnerable group should continue to follow strict physical distancing measures.
Those who have been advised that they are extremely clinically vulnerable (shielded) must continue to self-isolate, although exercise outside the home is now allowed, and you can meet up to 7 other people from a single household outside, remaining more than 2 metres apart.
The Association of British Neurologists has published guidance on COVID-19 and neurological conditions. This guidance is being updated regularly.
On 14 April 2020, Scottish Government launched a free helpline - 0800 111 4000 - for people in the high risk vulnerable group who do not have family or community support. The helpline is there to help people to access practical support with practical issues like shopping, medicines delivery and contact details for local organisations from their local authority.
Where to find the latest coronavirus information:
- Scottish Government
- Health Protection Scotland
- NHS Inform
- Free Coronavirus (COVID-19) helpline for people without symptoms who want general information 0800 028 2816 Opening hours: Monday - Friday, 8.00am - 10.00pm Saturday and Sunday, 9.00am to 5.00pm
There are a number of new funding streams designed to help charities to continue our vital work and support vulnerable people at this time. This includes a £20m Third Sector Resilience Fund for charities, community groups, social enterprises and voluntary organisations working in Scotland, and the £33m available through the Wellbeing Fund announced on 13 April 2020. Please see the SCVO Coronavirus Funding Page for more details of all the schemes and how to apply.
Other information for charities
OSCR also has information on COVID-19.
The Scottish Parliament Information Centre has curated a list of helpful local support.
Our friends at the Neurological Alliance in England have set up a Neuro COVID-19 response forum, to enable organisations to share experiences, suggest collective action and align messaging across the neurological third sector.
Tell us how we can help!
We would love to hear from you about the impact that the coronavirus outbreak is having on your charity and the people you support. Please email us to tell us about the challenges you’re facing, things that are helping your organisation, and your ideas about how we can facilitate neurological charities to work together at this challenging time.
Online meetings and actions for neurological charities
2 April 2020
We held an online meeting for our members on Thurs 2 Apr, 2020 at 12 noon via Zoom. Thank you to everyone who joined us. You can read the meeting notes here.
On Wednesday 15 April we wrote a letter to the Public Health Minister, Joe Fitzpatrick MSP, raising the issues that members spoke about at the meeting. You can see his reply here, and a response from Police Scotland here.
7 May 2020
We held a second meeting for members on Thurs 7 May, 2020 at 12 noon, via Zoom. Read the meeting notes here.
Scottish Huntington's Association has published findings from its survey of the impact of coronavirus on the Huntington's community in Scotland.
Members agreed to create a lived experience report from the neurological community.
4 June 2020
The meeting scheduled for Thursday 4 June, 12 noon - 2:30pm via Zoom, was cancelled.
9 June 2020
The Executive met with the Scottish GOvernment's lead on shielding policy to discuss the needs of people with neurological conditions who are shielding.
24 June 2020
We published our lived experience report, Neurological Voices: Living through lockdown.
26 June 2020
We will meet with the Minister for Public Health, Wellbeing and Sport, Joe Fitzpatrick MSP.
Please email us to RSVP.
In the meantime, please email us to suggest any items for future discussion.