Our members

The Neurological Alliance of Scotland currently has 35 members. Below you will find information regarding all of our member organisations with links to their website, their contact details and brief information about the information and services they provide.

All Alliance member organisations are welcome to attend meetings of the Executive Committee, which are held quarterly.

If you require information or wish to enquire about a particular neurological condition please contact the appropriate organisation. If you are unable to find or are not sure of the organisation you require please contact us and we will do our best to point you in the right direction.

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25% ME Group
21 Church Street
Troon
KA10 6HT
Tel: 01292 318611
E-mail: HelenB-25megroup@ntlworld.com
www.25megroup.org
Contact: Helen Brownlie

25% ME Group

The 25% ME Group is a voluntary organisation offering support services to people who are severely affected by Myalgic Encephalomyelitis (ME) and their carers throughout the UK. We are called the 25% ME Group because is estimated that one in four people with M.E. are severely affected. We are a user-led, user-driven charity providing a range of services to members, as well as producing information for relevant statutory and voluntary agencies. We also provide advice and assistance on a range of related topics including welfare rights.

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Action for ME
272 Bath Street
Glasgow
G2 4JR
Tel: 0141 353 9545
E-mail: katrina.allen@ationforME.org.uk
www.afme.org.uk
Contact: Katrina Allen

Action for ME

Action for ME is the UK's leading charity dedicated to improving the lives of people with ME. The organisation has been at the forefront of the campaign for more research, better treatments and services since 1987, and provide information and support to people affected by ME.

Alzheimer Scotland - Action on Dementia
22 Drumsheugh Gardens
Edinburgh
EH3 7RB
Tel: 0131 243 1453
E-mail: alzheimer@alzscot.org
www.alzscot.org
Contact: Amy Dalrymple, Head of Policy

Alzheimer Scotland - Action on Dementia

Alzheimer Scotland is the leading dementia organisation in Scotland. We campaign for the rights of people with dementia and their families and provide an extensive range of innovative and personalised support services. Our aims: • To be the national and local voice of and for people with dementia and their carers in Scotland; • To improve public policies for the benefit of people with dementia and their carers; • To provide and to secure the provision of high quality services for people with dementia; • To provide and to secure the provision of high quality services for carers of people with dementia.

Ataxia UK
Lincoln House
Kennington Park, 1 -3 Brixton Road
London
SW9 6DE
Tel: 020 7582 1444
E-mail: alisonlove1@sky.com; smillman@ataxia.org.uk
www.ataxia.org.uk

Ataxia UK

Ataxia UK is a national medical research charity for people affected by ataxia, a neurological condition that influences balance, speech and co-ordination. We fund research to develop treatments and find a cure. We provide services and support for those with ataxia, their families and carers. At least 10,000 adults in the UK have a form of ataxia and there is currently no cure. Helpline: 0845 644 0606

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Bobath Scotland
Children's Cerebral Palsy Therapy Centre
Bradbury House,10 High Craighall Road
Glasgow
G4 9UD
Tel: 0141 352 5000
E-mail: stephanie.fraser@bobathscotland.org.uk
www.bobathscotland.org.uk
Contact: Stephanie Fraser

Bobath Scotland

Bobath Scotland’s aim is to improve the quality of life for people living with cerebral palsy throughout Scotland. One in every 500 births are affected by cerebral palsy which impacts on people’s ability to walk, move, talk, eat and play. There is no cure for cerebral palsy but with therapy it is possible to improve independence and quality of life. The only centre of its kind in Scotland, Bobath Scotland provides multi-disciplinary specialist therapy that allows those with cerebral palsy to meet their potential. The Bobath approach is a 24/7 one. We help young people develop the skills they need to live a full life; we empower parents to give their child the best possible start and continued support; and we train education and healthcare professionals who work with those affected by cerebral palsy in the community to ensure a continuity of care.

Brain Tumour Action
25 Ann Street
Edinburgh
EH4 1PL
Tel: 0131 466 3116
E-mail: administrator@braintumouraction.org.uk
www.braintumouraction.org.uk
Contact: Lynne Barty

Brain Tumour Action

Brain Tumour Action is here to assist brain tumour patients, relatives, carers, educators and researchers. We provide help, produce information, fund research, support nurse training and work towards a day when brain tumours are fully understood and treatable. Brain Tumour Action also funds research in partnership with fourteen other Brain Tumour Charities which comprise Brain Tumour Research. Brian Tumour Action provides a set of ten information leaflets available free for individuals and groups on various aspects of brain tumour types and treatments. We coordinate a virtual support group and provide a telephone helpline, staffed by a trained counsellor, which is often of comfort to those most in need of someone to talk to. Brain Tumour Action has no employees, all our work is carried out by committed volunteers.

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Chest, Heart and Stroke Scotland
Head Office
Rosebery House, 9 Haymarket Terrace
Edinburgh
EH12 5EZ
Tel: 0131 225 6963
E-mail: mairi.chrystal@nhs.net
www.chss.org.uk
Contact: Mairi Chrystal

Chest, Heart and Stroke Scotland

Helpline: 08088010899 Chest, Heart and Stroke Scotland aims to improve the quality of life for people in Scotland affected by chest, heart and stroke illness through medical research, advice and information, and support in the community. CHSS is one of Scotland's leading medical charities. Coronary heart disease is our biggest killer. Stroke is the main cause of disability in the community. Chest illnesses of various kinds are the biggest single reason for using the health service. We fund research into all aspects of the prevention, diagnosis, treatment, rehabilitation and the social impact of chest, heart and stroke illness. Our current programme is worth more than £1m. CHSS provides care and support throughout Scotland for people affected by these conditions, including family and other carers.

Child Brain Injury Trust
Norton Park
57 Albion Road
Edinburgh
EH7 5QY
Tel: 0131 475 2598
E-mail: clairemurray
www.childbraininjurytrust.org.uk
Contact: Claire Murray

Child Brain Injury Trust

The Child Brain Injury Trust provides information, support and training to anyone affected by childhood acquired brain injury. This includes the child or young person themselves, their family and the professionals who support them. This support covers the following areas: • Direct support for families in hospital and at home • Support for children and young people in education • Social opportunities for children, young people and families • Training and information for parents and carers • Training and information for professionals • Useful leaflets, booklets and downloadable factsheets available at www.childbraininjurytrust.org • Small grants programme Telephone: 0303 303 2248. Email: helpline@cbituk.org

Cornfields Scotland
Ryehill
Oyne
Insch, Aberdeenshire
AB52 6QS
Tel: 01464 851539
E-mail: fiona@cornfields-scotland.co.uk
www.cornfields-scotland.co.uk
Contact: Fiona Mathers

Cornfields Scotland

Cornfields-Scotland aims to provide hope, inspiration and support to those affected by trauma or a traumatic event in their life and who may be experiencing isolation, exhaustion, confusion, loneliness or memory loss.

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The Dystonia Society
2nd Floor
89 Albert Embankment
London
SE1 7TP
Tel: 08458 031006
E-mail: info@dystonia.org.uk
www.dystonia.org.uk
Contact: Dorothy Chisholm 0845 803 1006

The Dystonia Society

Helpline: 0845 458 6322. The Dystonia Society exists to promote the welfare of people who are affected by any form of the neurological movement disorder known as dystonia. The Society aims to do this by promoting awareness of the disorder, by supporting research and by undertaking welfare initiatives. It does this on a national level and through its network of local support groups.

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Edinburgh M.E Self-help Group (edmesh)
Edinburgh
Tel: 08456 252025
E-mail: treasurer@edmesh.org.uk
www.edmesh.org.uk/
Contact: Margaret MacLaren

Edinburgh M.E Self-help Group (edmesh)

EdMESH are based in Edinburgh, but have members across the Lothians and also throughout Scotland and in England. Although core activities such as open meetings, informal social get-togethers and social events/outings are based in and around Edinburgh, anyone is welcome to join regardless of where they live. Although most members have ME, we also welcome carers, family and friends – indeed, anyone with an interest in ME or CFS. We aim to provide support, information and friendship to people affected by this illness.

Epilepsy Connections
100 Wellington Street
Glasgow
G2 6DH
Tel: 0141 248 4125
E-mail: info@epilepsyconnections.org.uk
www.epilepsyconnections.org.uk
Contact: Shirley Maxwell

Epilepsy Connections

Epilepsy Connections is a charity founded in April 2000 which provides information and support to people with epilepsy, their families, friends and those with whom they live and work. We run a variety of projects within the Greater Glasgow & Clyde and Forth Valley Health Board areas.

Epilepsy Scotland
48 Govan Road
G51 1JLGlasgow
G51 1JL
Tel: 0141 427 4911
E-mail: enquiries@epilepsyscotland.org.uk
www.epilepsyscotland.org.uk
Contact: Anissa Tonberg

Epilepsy Scotland

In Scotland 54,000 people live with epilepsy. Children and older people are most at risk of developing this common serious neurological condition but anyone can develop epilepsy at any time, and 8 people a day in Scotland do. We want to make sure the needs of people with epilepsy are met. This is why we campaign for improved healthcare, better information provision and an end to stigma. In April 2008 Enlighten, Tackling Epilepsy merged with Epilepsy Scotland

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Fairway Advocacy
Tel: 0141 357 6911
E-mail: tim@fairwayadvocacy.org.uk
www.fairwayadvocacy.org.uk
Contact: Tim Bone

Fairway Advocacy

Fairway Advocacy provides access to independent advocacy for adults who have a neurological disability. The current service is a pilot within West Central Scotland. It is hopeful this will act as an exemplar for future service development. Referral can be made directly to Tim Bone at 0141 357 6911 or 07415652525 or via the website.

Focus ARBD
Tel: 0131 228 8590
E-mail: focusarbd@gmail.com
www.infusioncoop.org.uk/focusarbd.htm
Contact: Chris Vickerman/Sally Dick

Focus ARBD

Focus ARBD is a natinal collective advocacy organisation of and for people who have alcohol related brain damage (ARBD). ARBD works to raise awareness and understanding of ARBD, tackle the stigma and promote ways of living positively with ARBD as well as campaigning to improve services and influence public policy.

Funding Neuro
145 North Street
Glasgow
G3 7DA
Tel: 0141 530 4424
E-mail: sharon@fundingneuro.com
www.fundingneuro.com
Contact: Sharon Kane

Funding Neuro

Funding Neuro funds research focused on solving the common problems which hinder progress towards cures and effective treatments for all conditions which affect the brain and spinal column.

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The Haven
Blantyre Health Centre
Victoria Street
Blantyre
G72 0BS
Tel: 01698 727884
E-mail: janice.williams@lanarkshire.scot.nhs.uk
www.thehavencentre.com
Contact: Janice Williams

The Haven

The Haven (Caring, Counselling, Communication Centre) provides information and support to people affected by life limiting illness such as multiple sclerosis, motor neurone disease and Parkinson's disease. Support is provided to people of all ages, including children, and to all family members and carers. The focus of The Haven is on improving quality of life and on living positively, and all services are delivered within the framework of 'supportive self-care'. Clients are supported to develop skills and confidence to cope with the effects of illness on themselves or their loved ones, to manage stress and, where appropriate, to re-engage within their community. Services include a specialist nurse information service, complementary therapies, counselling, children and family service, informal volunteer support, arts & crafts and 'active lifestyle' activities. Importantly, the programme of support is constantly reviewed and developed in conjunction with clients, to address their individual needs at all stages of their condition, from the point of diagnosis onwards. The Haven operates on a drop-in basis, without the need for medical referral and all services are provided free of charge.

Headway - The Brain Injury Association
Scotland Development Office, Astley Ainslie Hospital
133 Grange Loan
Edinburgh
EH9 2HL
Tel: 0131 537 9481
www.headway.org.uk

Headway - The Brain Injury Association

Helpline: 0808 800 2244. Contact Maria Murray, East Scotland Regional Co-ordinator or Gaille McCann, West Scotland Regional Co-ordinator Headway is a charity set up to give help and support to people affected by brain injury. Locally: A network of local groups and branches throughout the UK and Channel Islands offers a wide range of services, including rehabilitation programmes, carer support, social re-integration, community outreach and respite care. The services available will vary, depending on local needs and resources. Nationally: Headway UK provides support to the local groups and branches and helps to deliver high-quality services through guidance on policies, procedures, standards and training.

Headway Glasgow
C/O Renfield St Stephens Church Centre
260 Bath Street
Glasgow
G2 4JP
Tel: 0141 332 8878
E-mail: headwayglasgow@btconnect.com
www.headwayglasgow.org/
Contact: Simon Glen

Headway Glasgow

Helpline: 0808 800 2244. Headway Glasgow is a charity set up to promote understanding of all aspects of acquired brain injury and to provide information, support and services to people with brain injury, their families and carers. We aim to provide social rehabilitation and provide a self management programme among our activities. Headway Glasgow is affiliated to Headway the brain injury association but it is an independent charity (SC030113) run by a dedicated board with maximum service user and carer involvement.

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Leuchie House
Leuchie House
North Berwick
EH39 5NT
Tel: 01620 892864
E-mail: enquiries@leuchiehouse.org.uk
www.leuchiehouse.org.uk
Contact: Heather Kilfara

Leuchie House

Leuchie House is an independent charity providing caring respite breaks for people and their families affected by long-term physical conditions such as MS, Stroke, Huntington's Disease, Parkinson's, Motor Neurone Disease and Cerebral Palsy. Based in a country house in the East Lothian countryside, Leuchie House offers guests outings and activities alongside 24-hour nursing care in a non-clinical environment.

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ME Association
7 Apollo Court
Radclive Road
Gawcott, Bucks
MK18 4DF
Tel: 01280 818964
E-mail: ewandale@yahoo.co.uk
www.meassociation.org.uk
Contact: Ewan Dale, 0141 332 8115

ME Association

Helpline: 0870 444 1836 (non-members); 0870 444 1835 (members). The ME Association provides information, support and practical advice for people who are affected by ME/CFS/PVFS (Myalgic Encephalopathy/Chronic Fatigue Syndrome/Post Viral Fatigue Syndrome) and their families and carers; funding and supporting research and providing education and training.

MND Scotland
2nd Floor, City View
6 Eagle Street
Glasgow
G4 9XA
Tel: 0141 332 3903
E-mail: gemma.bradley@mndscotland.org.uk
www.mndscotland.org.uk
Contact: Gemma Bradley

MND Scotland

MND Scotland is an independent Scottish charity serving people with motor neurone disease. They provide people affected by motor neurone disease with specialist care and equipment. They offer information, counselling, and benefits advice. The charity seeks to improve MND knowledge amongst health and social services through education, and they fund research to help find a cause and cure for motor neurone disease. This year MND Scotland will spend around £1 million raised almost entirely by supporters to fund its services. For more information call Gemma Bradley on 0141 332 3903 or e-mail: gemma.bradley@mndscotland.org.uk

Momentum Scotland
Momentum Skills, Tower 77, 7th Floor,
77 Renfrew Street
Glasgow
G2 3BZ
Tel: 0141 333 0567
E-mail: hwood@momentumskills.org
www.momentumscotland.org
Contact: Harry Wood

Momentum Scotland

The Momentum group has more than 50 years of experience assisting disabled and excluded people throughout the country to realise their goals and achieve their potential. We deliver a range of innovative programmes, which assist more than 2,000 people every year. Our programmes put people at the heart of what we do and support a wide range of individuals in the following areas: brain injury; mental health; employment and training; job retention; pan-disability; care and supported living and community rehabilitation. Momentum's flexible programmes enable people to gain the skills, training and experience that they need to live independently and to achieve their goals.

MS Society Scotland
Ratho Park, 88 Glasgow Road
Ratho Station
Newbridge
EH28 8PP
Tel: 0131 335 4050
E-mail: enquiries@mssocietyscotland.org.uk
www.mssocietyscotland.org.uk
Contact: Becky Duff

MS Society Scotland

Helpline: 0808 800 8000. The MS Society is Scotland's largest voluntary organisation dedicated to supporting everyone whose life has been affected by MS. We depend on charitable fundraising and the support of the public and volunteers to be able to do our work. We provide a range of services, including a free information service, publications and website, a free helpline, respite holidays at Leuchie House, local branch support, self-management training, financial support and self-catering holidays.

MS Therapy Centre Lothian
40c Swanfield
Edinburgh
EH6 5RX
Tel: 0131 554 5384
E-mail: chair@mstc-lothian.org.uk
www.mstc-lothian.org.uk
Contact: Carole Macartney

MS Therapy Centre Lothian

The MS Therapy Centre Lothian is based in Leith, Edinburgh which supports people living with MS in the Lothians, Borders and some parts of Fife with an ethos of self-management. We offer a range of services and therapies to people with Multiple Sclerosis, including a physiotherapy service to which they can self-refer and which complements the service provided by the NHS. We also provide hyperbaric oxygen therapy which can help manage symptoms of MS. In addition, we encourage people to remain active and self-manage their health by offering classes in Yoga and Pilates that are adapted to suit the ability of the participants. Furthermore, we have a variety of complementary therapies available such as Reflexology, Reiki and Massage.

Multiple Sclerosis Trust
Spirella Building
Letchworth Garden City
SG6 4ET
Tel: 07950 483885
E-mail: geraldine.mynors@mstrust.org.uk
www.mstrust.org.uk
Contact: Geraldine Mynors

Multiple Sclerosis Trust

The Multiple Sclerosis (MS) Trust is a UK charity, providing information for anyone affected by multiple sclerosis, education programmes for health professionals, funding for practical research and campaigning for specialist multiple sclerosis services. Our vision is to enable people to with MS to live their lives to the full. The MS Trust is currently working closely with two MS teams in Scotland: Tayside and Western Isles, as part of the GEMSS (Generating Evidence in MS Services) programme.

Multiple System Atrophy Trust
MSA Trust
Southbank House, Black Prince Road
London
SE1 7SJ
Tel: 020 7940 4666
E-mail: office@msatrust.org.uk
www.msatrust.org.uk
Contact: Katie Rigg

Multiple System Atrophy Trust

The Multiple System Atrophy Trust is the UK’s support and information service for people with multiple system atrophy, their families and carers. It also funds research to find the cause, and one day, cure for MSA.

Myaware
The College Business Centre
Uttoxeter Ne Road
Derby
DE22 3W2
Tel: 01698 261752
E-mail: lynn.stewart@myaware.org
www.myaware.org
Contact: Lynn Stewart

Myaware

Myaware is the new name for the Myasthenia Gravis Association. MGA has been around since May 1976 and supports people with myasthenia and their families, increases public and medical awareness of the condition and raises funds for research and support staff. Head office is based in Derby but there are branches in Scotland, Northern Ireland, Wales and Eire as well as across England.

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Pain Concern
Tel: 03001 23789
E-mail: info@painconcern.org.uk
www.painconcern.org.uk

Pain Concern

Pain Concern provides information and support to people with pain and those who care for them, whether family, friends or healthcare professionals. We aim to raise awareness about pain and improve the provision of pain management services, through our policy and campaigning work. Our Airing Pain radio show is a series of audio podcasts featuring the experiences of those managing their everyday pain, and interviews with top, internationally recognised experts. Our magazine Pain Matters contains news, features and comments on topics including self-management techniques, research into pain treatments and personal experiences of living with pain. It is available in print and electronic form. We run a helpline staffed by volunteers who provide information, support or just a listening ear to people wanting to talk about their own pain or that of a family membr or friend, and an online community on HealthUnlocked which provides members with a forum to share experiences. A free information pack on how to manage pain is available.

Parkinson's UK
Forsyth House, Lomond Court
Castle Business Park
Stirling
FK9 4TU
Tel: 01786 431732
E-mail: scotland@parkinsons.org.uk
www.parkinsons.org.uk
Contact: Tanith Muller, Campaigns Officer

Parkinson's UK

Because we’re here, no one has to face Parkinson’s alone. We bring people with Parkinson’s, their carers and families together via our network of local groups, our website and free confidential helpline. Specialist nurses, our supporters and staff provide information and training on every aspect of Parkinson’s. As the UK’s Parkinson’s support and research charity we’re leading the work to find a cure, and we’re closer than ever. We also campaign to change attitudes and demand better services. Our work is totally dependent on donations. Help us to find a cure and improve life for everyone affected by Parkinson’s. We have a dedicated staff team in Scotland, and local groups across the country supporting people affected by Parkinson’s. Free* confidential helpline 0808 800 0303 Monday to Friday 9am–8pm Saturday 10am–2pm. Interpreting available. Text relay 18001 0808 800 0303 *Calls are free from UK landlines and most mobile networks.

Perth Hyperbaric Services Ltd
62B Perth Airport
Scone
Perth
PH2 6PL
Tel: 01738 551792
E-mail: enquiries@perth-hyperbaric.org.uk
www.perth-hyperbaric.org.uk
Contact: Sandy Pearson

Perth Hyperbaric Services Ltd

The Perth Oxygen Therapy Centre Perth based at Perth Airport is operated by Perth Hyperbaric Services Ltd, a not for profit company and registered charity. The centre brings to its members the opportunity to experience the benefits of breathing high dose oxygen in one of our Hyperbaric Oxygen Chambers.The aim is to enable people to treat themselves in order to maintain as active and productive a life as possible. Perth Oxygen Centre is a friendly environment where users and volunteer operators support each other to provide the best service. The charity is run entirely by volunteers and enables people to obtain access to oxygen therapy at an affordable cost.

Progressive Supranuclear Palsy (PSP Europe) Association
PSP House, 167 Watling Street
Towcester
NN12 6BX
Tel: 01327 322410
E-mail: david.mills@pspassociation.org.uk or helpline@pspassociation.org.uk
www.pspassociation.org.uk
Contact: David Mills

Progressive Supranuclear Palsy (PSP Europe) Association

The Progressive Supranuclear Palsy Association supports people with PSP and the closely related condition Cortico Basal Degeneration (CBD) across Scotland. We provide a comprehensive carer’s information pack, support groups and open meetings. The PSP has a telephone helpline 0300 0110 122. On the website is a discussion forum and offers information and teaching sessions to health professionals. A telephone helpline is available to our PSP/CBD Specialist Care Adviser David Mills, on 01573 224 534.

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Revive MS Support
MS Therapy Centre, 16 Chapel Street Estate
Maryhill
Glasgow
G20 9BD
Tel: 0141 945 3344
E-mail: info@revivemssupport.org.uk
www.revivemssupport.org.uk
Contact: Iain Morrison

Revive MS Support

Revive MS Support is dedicated to helping people with Multiple Sclerosis, their family and carers lead the most fulfilling lives possible. Reaching out to people affected by MS throughout West and Central Scotland, a team of MS professionals offer a comprehensive range of therapies and other specialist services, together with support and advice from a welcoming MS Centre in Glasgow and outreach clinics elsewhere.

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Scottish Centre for Children with Motor Impairments
Craighalbert Centre
1 Craighalbert Way
Cumbernauld
G68 0LS
Tel: 01236 456100
E-mail: psalter@craighalbert.org.uk
www.craighalbert.org.uk
Contact: Professor P Salter

Scottish Centre for Children with Motor Impairments

The Scottish Centre for Children with Motor Impairments (SCCMI), based at the Craighalbert Centre is one of Scotland’s Grant Aided Special Schools and is funded directly by the Scottish Government to provide specialist high quality therapy and education for children and young people affected by cerebral palsy and similar neurological conditions, including some of those with ‘complex and exceptional healthcare needs’. The age of children/young people with whom SCCMI engages ranges from birth to 19 years. Cerebral palsy describes a wide range of difficulties affecting children associated with balance, posture, movement, co-ordination, communication and the ability to learn. These difficulties are the result of damage to the brain, which can occur before or during birth, or in the first two years of a child’s life, when the brain is developing. SCCMI offers a range of programmes all of which address the child/young person’s education, movement, life skills and communication requirements. Each programme has a different emphasis but all are characterised, where appropriate by integrated educational and therapy provision and in all programmes parents are regarded as partners in the provision of education and therapy and all programmes welcome substantial parental engagement. The major programmes offered include: Early Intervention Programme - Addressing the needs of children between birth and 3 years attending with parents and incorporating assessment, therapeutic intervention, cognitive ability development and parental instruction. Nursery/Primary Classes - Addressing the needs of children between the ages 3 - 12 years and addressing all educational and therapeutic needs. Access to Education Programme - Designed for children/young people between the ages of 3 and 19 years resident in any part of Scotland. The programme facilitates the child’s access to education within the local mainstream school community through developing physical abilities and life skills. These programmes are delivered by high quality staff to address children/young people’s educational needs including Primary Teachers, Highly Specialist Physiotherapists, Occupational Therapists and Speech and Language Therapists. The nature and age range of the children/young people engaging with SCCMI, and the services delivered means that SCCMI is a unique organisation in Scotland. In 2014, Scotland Excel ranked SCCMI highest of over 50 organisations across Scotland for nursery and primary school education for children with additional support needs. SCCMI’s activities are guided by a range of beliefs which include: All individuals are of equal worth, have equal rights to have their abilities developed, and have the right to develop to their fullest potential. All children and young people have the capacity for progress, and the focus on a child with additional support needs should be on the achievement, progress and potential realisation. Each child/young person should receive a qualitatively and quantitatively appropriate level of educational and therapeutic service which meets their individual needs.

Scottish Epilepsy Centre, Quarriers
Quarriers Upper Village
Bridge of Weir
PA11 3SD
Tel: 01505 616066
E-mail: Scottishepilepsycentre@quarriers.org.uk
www.scottishepilepsycentre.org.uk/
Contact: Gerard Gahagan

Scottish Epilepsy Centre, Quarriers

The Scottish Epilepsy Centre provides the only residential assessment and treatment centre in Scotland for adults with epilepsy. We are an Independent Hospital operated by Quarriers Charity providing services to patients and clinicians across Scotland. Our 10 bedded in-patient facility provides flexible, patient-centred residential assessment for adults 16 years and over. We offer multidisciplinary in-patient assessment to people with complex diagnostic and treatment needs. The Scottish Epilepsy Centre provides inpatient clinical review, diagnostic assessment such as EEG, ambulatory EEG and videotelemetry, the ability to initiate or withdraw medications in a safe monitored environment, outpatient and telemedicine clinics. Our team includes consultant neurologists, a consultant neurophysiologist, an epilepsy nurse specialist, a clinical neuropsychologist, clinical physiologists and experienced nursing staff.

Scottish Head Injury Forum
C/O Charles Bell Pavilion,
Astley Ainslie Hospital, 133 Grange Loan,
Edinburgh
EH9 2HL
E-mail: info@shif.org.uk
www.shif.org.uk
Contact: Becc Sanderson

Scottish Head Injury Forum

SHIF is a registered Scottish Charity, founded in 1993. It is a national umbrella organisation representing the interests of survivors of brain injuries, their families, and those who work with them. SHIF works to increase knowledge of the effects of acquired brain injury amongst service users and their families, healthcare and social work service providers and policy makers.

Scottish Huntington's Association
Business First Glasgow
Linwood Point
Paisley
PA1 2FB
Tel: 0141 848 0308
E-mail: john.eden@hdscotland.org
www.hdscotland.org
Contact: John Eden

Scottish Huntington's Association

The Scottish Huntington's Association (SHA) is a small Scottish Charity established by families living with Huntington's disease in the late 1980s. Experiencing directly the dearth of services available to them, the organisation pursued the goal of setting up specialist family support services and this ultimately blossomed into the development of an extensive network of specialist services.

Scottish Post Polio Network
23/2 Maxwell Street
Edinburgh
EH10 5HT
Tel: 0131 447 3486
E-mail: scottishpolio@talktalk.net
www.sppn.org.uk
Contact: Helene MacLean

Scottish Post Polio Network

Post Polio Syndrome (PPS) refers to a range of symptoms experienced by many polio survivors. These symptoms include chronic fatigue, muscle and joint problems, respiratory problems, and swallowing and speech difficulties. The Scottish Post Polio Network was formed in 2001 to increase awareness of Post Polio Syndrome and provide a support network for those with the condition. The Network is committed to providing people who have had polio with the most up-to-date information about Post Polio Syndrome, and to campaigning for recognition of Post Polio Syndrome.

Scottish Spina Bifida Association
The Dan Young Building
6 Craighalbert Way
Cumbernauld
G68 0LS
Tel: 01236 794500
E-mail: mail@ssba.org.uk
www.ssba.org.uk
Contact: Andrew HD Wynd, 01236 794500

Scottish Spina Bifida Association

Helpline: 08459 11 11 12. The SSBA is Scotland's voice for spina bifida, hydrocephalus and related conditions. The SSBA seeks to increase public awareness and understanding of individuals with spina bifida and/or Hydrocephalus and allied disorders. It aims to support all those affected to identify their needs and to empower them to make informed choices and decisions.

Spinal Injuries Scotland
Festival Business Centre
150 Brand Street
Glasgow
G51 1DH
Tel: 0141 427 7686
E-mail: dougy.johnstone@sisonline.org
www.sisonline.org
Contact: Dougy Johnstone, Peer Support Manager

Spinal Injuries Scotland

Spinal Injuries Scotland is the national voluntary organisation concerned with new and long-term spinal cord injured people, their relatives and friends, along with those involved in the management, care and rehabilitation of the injury. Our aim is to provide information, advice, support and education. SIS provides immediate support through the office based Information Service and our Area Representative Network who contact all those who request assistance. SIS has a Legal and Welfare Rights Advisory service. Our peer support volunteers, who are able to discuss all aspects of living with a spinal cord injury, undertake weekly visits to the Queen Elizabeth National Spinal Injuries Unit.

The Stroke Association
Links House
15 Links Place
Edinburgh
EH6 7EZ
Tel: 0131 555 7240
E-mail: angela.macleod@stroke.org.uk
www.stroke.org.uk
Contact: Angela MacLeod

The Stroke Association

Helpline: 0303 303 3100. The Stroke Association is a charity. We believe in life after stroke and we’re leading a community of people to change the world for people affected by stroke. We work directly with stroke survivors and their families and carers, with health and social care professionals and with scientists and researchers. We campaign to improve stroke care and support people to make the best recovery they can. We fund research to develop new treatments and ways of preventing stroke. The Stroke Helpline, 0303 303 3100, provides information and support on stroke. More information can be found at our website.

Sue Ryder Care
2nd Floor
114-118 Southampton Row
London
WC1B 5AA
Tel: 020 7400 0440
incrediblecare.sueryder.org
Contact: Pamela MacKenzie

Sue Ryder Care

Sue Ryder Care supports people with specialist palliative, end of life and long-term neurological care needs. Each year we provide four million hours of care to people living with cancer, multiple sclerosis, Huntington's disease, Parkinson's disease, motor neurone disease, stroke and brain injury.

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The Brain Tumour Charity
E-mail: gus.ironside@thebraintumourcharity.org
www.thebraintumourcharity.org/
Contact: Gus Ironside

The Brain Tumour Charity

The Brain Tumour Charity is the leading, caring charity committed to fighting brain tumours. Our personalised support is available online, on the phone, by email and through support groups. Our scientific research improves the quality of life for brain tumour patients and identifies better treatments. We raise awareness to change things for the better, for everyone affected by a brain tumour.

Tourette Scotland
Inveralmond Business Centre
Auld Bond Road
Perth
PH1 3FX
Tel: 01738 646742
E-mail: ruth@tourettescotland.org
www.tourettescotland.org
Contact: Ruth Smith

Tourette Scotland

Tourette Scotland provides services such as newsletters, training fact-sheets and information packs for professtionals. Events include monthly area support meetings, Spring and Autumn Meetings where members meet to share their experiences. We raise awareness through our training sessions, seminars and research. Tourette Syndrome is very misunderstood, being projected as a 'swearing disease' even though only 1 in 5 develop this particular tic, and it is a small part of the overall condition. Those who live with this condition day by day suffer prejudice and isolation. We receive no statutory funding and rely on funding through grants, donations and fundraising. Any donations can be directed via our website using the link to JustGiving, or by post to our office in Perth. Our helpline telephone number is 0300 11 11 462

The Transverse Myelitis Scotland Support Group
26 Lichtenfels Gardens
Prestwick
KA9 1EP
Tel: 01292 476758
E-mail: margaretshearer@myelitis.org
www.myelitis.org/scotland

The Transverse Myelitis Scotland Support Group

The group is affiliated with the worldwide organisation The Transverse Myelitis Association (TMA). Established in 2003, we have over 90 members in Scotland and meet bimonthly in the Southern General Hospital. Dates of our meetings are posted on our website.