The Neurological Alliance of Scotland currently has 35 members. Below you will find information regarding all of our member organisations with links to their website, their contact details and brief information about the information and services they provide.
All Alliance member organisations are welcome to attend meetings of the Executive Committee, which are held quarterly.
If you require information or wish to enquire about a particular neurological condition please contact the appropriate organisation. If you are unable to find or are not sure of the organisation you require please contact us and we will do our best to point you in the right direction.
25% ME Group
The 25% ME Group is a voluntary organisation offering support services to people who are severely affected by Myalgic Encephalomyelitis (ME) and their carers throughout the UK. We are called the 25% ME Group because is estimated that one in four people with M.E. are severely affected. We are a user-led, user-driven charity providing a range of services to members, as well as producing information for relevant statutory and voluntary agencies. We also provide advice and assistance on a range of related topics including welfare rights.
Action for ME
Action for ME is the UK's leading charity dedicated to improving the lives of people with ME. The organisation has been at the forefront of the campaign for more research, better treatments and services since 1987, and provide information and support to people affected by ME.
Alzheimer Scotland - Action on Dementia
Alzheimer Scotland is the leading dementia organisation in Scotland. We campaign for the rights of people with dementia and their families and provide an extensive range of innovative and personalised support services.
• To be the national and local voice of and for people with dementia and their carers in Scotland;
• To improve public policies for the benefit of people with dementia and their carers;
• To provide and to secure the provision of high quality services for people with dementia;
• To provide and to secure the provision of high quality services for carers of people with dementia.
Ataxia UK is a national medical research charity for people affected by ataxia, a neurological condition that influences balance, speech and co-ordination. We fund research to develop treatments and find a cure. We provide services and support for those with ataxia, their families and carers. At least 10,000 adults in the UK have a form of ataxia and there is currently no cure.
Helpline: 0845 644 0606
Bobath Scotland’s aim is to improve the quality of life for people living with cerebral palsy throughout Scotland. One in every 500 births are affected by cerebral palsy which impacts on people’s ability to walk, move, talk, eat and play. There is no cure for cerebral palsy but with therapy it is possible to improve independence and quality of life.
The only centre of its kind in Scotland, Bobath Scotland provides multi-disciplinary specialist therapy that allows those with cerebral palsy to meet their potential. The Bobath approach is a 24/7 one. We help young people develop the skills they need to live a full life; we empower parents to give their child the best possible start and continued support; and we train education and healthcare professionals who work with those affected by cerebral palsy in the community to ensure a continuity of care.
Brain Tumour Action
Brain Tumour Action is here to assist brain tumour patients, relatives, carers, educators and researchers. We provide help, produce information, fund research, support nurse training and work towards a day when brain tumours are fully understood and treatable. Brain Tumour Action also funds research in partnership with fourteen other Brain Tumour Charities which comprise Brain Tumour Research.
Brian Tumour Action provides a set of ten information leaflets available free for individuals and groups on various aspects of brain tumour types and treatments. We coordinate a virtual support group and provide a telephone helpline, staffed by a trained counsellor, which is often of comfort to those most in need of someone to talk to.
Brain Tumour Action has no employees, all our work is carried out by committed volunteers.
Brain Tumour UK
Brain Tumour UK is the leading, caring charity committed to fighting brain tumours. Our personalised support is available online, on the phone, by email and through support groups. Our scientific research improves the quality of life for brain tumour patients and identifies better treatments. We raise awareness to change things for the better, for everyone affected by a brain tumour.
Chest, Heart and Stroke Scotland
Helpline: 0845 077 6000
Chest, Heart and Stroke Scotland aims to improve the quality of life for people in Scotland affected by chest, heart and stroke illness through medical research, advice and information, and support in the community.
CHSS is one of Scotland's leading medical charities. Coronary heart disease is our biggest killer. Stroke is the main cause of disability in the community. Chest illnesses of various kinds are the biggest single reason for using the health service.
We fund research into all aspects of the prevention, diagnosis, treatment, rehabilitation and the social impact of chest, heart and stroke illness. Our current programme is worth more than £1m.
CHSS provides care and support throughout Scotland for people affected by these conditions, including family and other carers.
The Dystonia Society
Helpline: 0845 458 6322
The Dystonia Society exists to promote the welfare of people who are affected by any form of the neurological movement disorder known as dystonia. The Society aims to do this by promoting awareness of the disorder, by supporting research and by undertaking welfare initiatives. It does this on a national level and through its network of local support groups.
Edinburgh M.E Self-help Group (edmesh)
EdMESH are based in Edinburgh, but have members across the Lothians and also throughout Scotland and in England. Although core activities such as open meetings, informal social get-togethers and social events/outings are based in and around Edinburgh, anyone is welcome to join regardless of where they live.
Although most members have ME, we also welcome carers, family and friends – indeed, anyone with an interest in ME or CFS. We aim to provide support, information and friendship to people affected by this illness.
Epilepsy Connections is a charity founded in April 2000 which provides information and support to people with epilepsy, their families, friends and those with whom they live and work.
We run a variety of projects within the Greater Glasgow & Clyde and Forth Valley Health Board areas.
Epilepsy Scotland provides information and services to people with epilepsy, friends and family and care professionals.
The Haven (Caring, Counselling, Communication Centre) provides information and support to people affected by life limiting illness such as multiple sclerosis, motor neurone disease and Parkinson's disease. Support is provided to people of all ages, including children, and to all family members and carers.
The focus of The Haven is on improving quality of life and on living positively, and all services are delivered within the framework of 'supportive self-care'. Clients are supported to develop skills and confidence to cope with the effects of illness on themselves or their loved ones, to manage stress and, where appropriate, to re-engage within their community.
Services include a specialist nurse information service, complementary therapies, counselling, children and family service, informal volunteer support, arts & crafts and 'active lifestyle' activities. Importantly, the programme of support is constantly reviewed and developed in conjunction with clients, to address their individual needs at all stages of their condition, from the point of diagnosis onwards.
The Haven operates on a drop-in basis, without the need for medical referral and all services are provided free of charge.
Headway - The Brain Injury Association
Helpline: 0808 800 2244
Contact Maria Murray, East Scotland Regional Co-ordinator
or Gaille McCann, West Scotland Regional Co-ordinator
Headway is a charity set up to give help and support to people affected by brain injury.
: A network of local groups and branches throughout the UK and Channel Islands offers a wide range of services, including rehabilitation programmes, carer support, social re-integration, community outreach and respite care. The services available will vary, depending on local needs and resources.
: Headway UK provides support to the local groups and branches and helps to deliver high-quality services through guidance on policies, procedures, standards and training.
Helpline: 0808 800 2244
Headway Glasgow is a charity set up to promote understanding of all aspects of acquired brain injury and to provide information, support and services to people with brain injury, their families and carers. We aim to provide social rehabilitation and provide a self management programme among our activities.
Headway Glasgow is affiliated to Headway the brain injury association but it is an independent charity (SC030113) run by a dedicated board with maximum service user and carer involvement.
Helpline: 0870 444 1836
(non-members); 0870 444 1835
The ME Association provides information, support and practical advice for people who are affected by ME/CFS/PVFS (Myalgic Encephalopathy/Chronic Fatigue Syndrome/Post Viral Fatigue Syndrome) and their families and carers; funding and supporting research and providing education and training.
Meningitis Research Foundation
Meningitis Research Foundation's vision is a world free from meningitis and septicaemia. We fund research to prevent meningitis and septicaemia, and to improve survival rates and outcomes. The Foundation promotes education and awareness to reduce death and disability, and gives support to people affected.
We have a 24 hour Freefone helpline on 080 8800 3344 for any concerns you may have about meningitis and septicaemia. You can access further support through our foundation including our telephone befriending scheme and information about disability rights and benefits.
MND Scotland is an independent Scottish charity serving people with motor neurone disease. They provide people affected by motor neurone disease with specialist care and equipment. They offer information, counselling, and benefits advice.
The charity seeks to improve MND knowledge amongst health and social services through education, and they fund research to help find a cause and cure for motor neurone disease. This year MND Scotland will spend around £1 million raised almost entirely by supporters to fund its services.
For more information call Bryan Carroll on 0141 945 1077, mobile 07554 5211956 or e-mail email@example.com
The Momentum group has more than 50 years of experience assisting disabled and excluded people throughout the country to realise their goals and achieve their potential.
We deliver a range of innovative programmes, which assist more than 2,000 people every year. Our programmes put people at the heart of what we do and support a wide range of individuals in the following areas: brain injury; mental health; employment and training; job retention; pan-disability; care and supported living and community rehabilitation.
Momentum's flexible programmes enable people to gain the skills, training and experience that they need to live independently and to achieve their goals.
MS Society Scotland
Helpline: 0808 800 8000
The MS Society is Scotland's largest voluntary organisation dedicated to supporting everyone whose life has been affected by MS. We depend on charitable fundraising and the support of the public and volunteers to be able to do our work.
We provide a range of services, including a free information service, publications and website, a free helpline, respite holidays at Leuchie House, local branch support, self-management training, financial support and self-catering holidays.
MS Therapy Centre Lothian
The MS Therapy Centre Lothian is based in Leith, Edinburgh which supports people living with MS in the Lothians, Borders and some parts of Fife with an ethos of self-management.
We offer a range of services and therapies to people with Multiple Sclerosis, including a physiotherapy service to which they can self-refer and which complements the service provided by the NHS.
We also provide hyperbaric oxygen therapy which can help manage symptoms of MS.
In addition, we encourage people to remain active and self-manage their health by offering classes in Yoga and Pilates that are adapted to suit the ability of the participants. Furthermore, we have a variety of complementary therapies available such as Reflexology, Reiki and Massage.
Free Helpline: 0300 123 0789
Pain Concern provides information and support for people who live with pain and those who care for and about them. We offer a Listening-ear Helpline and free leaflets to help you manage your pain (Send three second class stamps for our information pack).
Our magazine 'Pain Matters' brings you the best of self-help - how to cope with pain, how well our pain services are working, updates on the latest research and developments, 'Get in Touch' column, and 'Readers' Forum' for your news and views.
Pain Concern also campaigns on pain – we support the Scottish Parliament's Cross Party Group on Chronic Pain, the Pain Policy Forum at Westminster, and the International Association for the Study of Pain (IASP) 'Global Year Against Pain'.
Added to our list of resources is a new internet radio programme which covers various topics on chronic pain. The programmes remain as podcasts on the broadcaster's website (Ableradio.com) as an accessible support system. We are now about to broadcast programme 10. Recently we won Scottish lottery funding to produce programmes focusing on Scottish pain services.
Because we’re here, no one has to face Parkinson’s alone.
We bring people with Parkinson’s, their carers and families together via our network of local groups, our website and free confidential helpline. Specialist nurses, our supporters and staff provide information and training on every aspect of Parkinson’s.
As the UK’s Parkinson’s support and research charity we’re leading the work to find a cure, and we’re closer than ever. We also campaign to change attitudes and demand better services.
Our work is totally dependent on donations. Help us to find a cure and improve life for everyone affected by Parkinson’s.
We have a dedicated staff team in Scotland, and local groups across the country supporting people affected by Parkinson’s.
Free* confidential helpline 0808 800 0303
Monday to Friday 9am–8pm
Saturday 10am–2pm. Interpreting available.
Text relay 18001 0808 800 0303
*Calls are free from UK landlines and most mobile networks.
Progressive Supranuclear Palsy (PSP Europe) Association
The Progressive Supranuclear Palsy Association supports people with PSP and the closely related condition Cortico Basal Degeneration (CBD) across Scotland. We provide a comprehensive carer’s information pack, support groups and open meetings.
The PSP has a website, a discussion forum and offers information and teaching sessions to health professionals.
A telephone helpline is available to our PSP/CBD Specialist Care Adviser David Mills, on 01573 224 534.
Revive MS Support
Revive MS Support is dedicated to helping people with Multiple Sclerosis, their family and carers lead the most fulfilling lives possible. Reaching out to people affected by MS throughout West and Central Scotland, a team of MS professionals offer a comprehensive range of therapies and other specialist services, together with support and advice from a welcoming MS Centre in Glasgow and outreach clinics elsewhere.
Scottish Epilepsy Centre, Quarriers
The Scottish Epilepsy Centre provides the only residential assessment and treatment centre in Scotland for adults with epilepsy.
We are an Independent Hospital operated by Quarriers Charity providing services to patients and clinicians across Scotland. Our 10 bedded in-patient facility provides flexible, patient-centred residential assessment for adults 16 years and over.
We offer multidisciplinary in-patient assessment to people with complex diagnostic and treatment needs. The Scottish Epilepsy Centre provides inpatient clinical review, diagnostic assessment such as EEG, ambulatory EEG and videotelemetry, the ability to initiate or withdraw medications in a safe monitored environment, outpatient and telemedicine clinics. Our team includes consultant neurologists, a consultant neurophysiologist, an epilepsy nurse specialist, a clinical neuropsychologist, clinical physiologists and experienced nursing staff.
Scottish Head Injury Forum
SHIF is a registered Scottish Charity, founded in 1993. It is a national umbrella organisation representing the interests of survivors of brain injuries, their families, and those who work with them.
SHIF works to increase knowledge of the effects of acquired brain injury amongst service users and their families, healthcare and social work service providers and policy makers.
Scottish Huntington's Association
The Scottish Huntington's Association (SHA) is a small Scottish Charity established by families living with Huntington's disease in the late 1980s.
Experiencing directly the dearth of services available to them, the organisation pursued the goal of setting up specialist family support services and this ultimately blossomed into the development of an extensive network of specialist services.
Scottish Spina Bifida Association
Helpline: 08459 11 11 12
The SSBA is Scotland's voice for spina bifida, hydrocephalus and related conditions.
The SSBA seeks to increase public awareness and understanding of individuals with spina bifida and/or Hydrocephalus and allied disorders. It aims to support all those affected to identify their needs and to empower them to make informed choices and decisions.
Spinal Injuries Scotland
Spinal Injuries Scotland is the national voluntary organisation concerned with new and long-term spinal cord injured people, their relatives and friends, along with those involved in the management, care and rehabilitation of the injury. Our aim is to provide information, advice, support and education.
SIS provides immediate support through the office based Information Service and our Area Representative Network who contact all those who request assistance. SIS has a Legal and Welfare Rights Advisory service and also run a self-referral support line. Our representatives, who are able to discuss all aspects of living with a spinal cord injury, undertake weekly visits to the Queen Elizabeth National Spinal Injuries Unit.
The Stroke Association
Helpline: 0303 303 3100
The Stroke Association is a charity. We believe in life after stroke and we’re leading a community of people to change the world for people affected by stroke. We work directly with stroke survivors and their families and carers, with health and social care professionals and with scientists and researchers. We campaign to improve stroke care and support people to make the best recovery they can. We fund research to develop new treatments and ways of preventing stroke. The Stroke Helpline, 0303 303 3100, provides information and support on stroke. More information can be found at our website.
Sue Ryder Care
Sue Ryder Care supports people with specialist palliative, end of life and long-term neurological care needs. Each year we provide four million hours of care to people living with cancer, multiple sclerosis, Huntington's disease, Parkinson's disease, motor neurone disease, stroke and brain injury.
Tourette Scotland provides services such as newsletters, training fact-sheets and information packs for professtionals. Events include monthly area support meetings, Spring and Autumn Meetings where members meet to share their experiences. We raise awareness through our training sessions, seminars and research.
Tourette Syndrome is very misunderstood, being projected as a 'swearing disease' even though only 1 in 5 develop this particular tic, and it is a small part of the overall condition. Those who live with this condition day by day suffer prejudice and isolation.
We receive no statutory funding and rely on funding through grants, donations and fundraising. Any donations can be directed via our website using the link to JustGiving, or by post to our office in Perth.
Our helpline telephone number is 0300 11 11 462
The Towpath Trust
We are an umbrella organisation that supports neurological charities and organisations. We support charities based in the Chapel Street Estate, Maryhill, Glasgow and run a transport project and educational project which is rolled out to other organisations.
We are currently involved with Glasgow City Council in trying to establish a neuro-charity centre.
The Transverse Myelitis Scotland Support Group
The group is affiliated with the worldwide organisation The Transverse Myelitis Association (TMA). Established in 2003, we have over 70 members in Scotland and meet bimonthly in the Southern General Hospital. Dates of our meetings are posted on our website.