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National Neurological Advisory Group

national neurological advisory group - annual report 2013

The National Neurological Advisory Group launched its annual report for 2013 at its Learning & Sharing Event in March. A copy of the report is now available for download here.

National Neurological Advisory Group Update April 2014

The NNAG held its first annual Learning and Sharing event in March 2014.

Delegates including Scottish Government, Clinicians, AHPs, NHS Managers, Third sector organisations and Neurological Voices, were updated on the progress of the NNAG and received a copy of the NNAG annual review which was launched on the day by NNAG Chair, Andy Wynd.

Michael Matheson, Minister for Pubic Health addressed the audience and announced that the NNAG would received funding for the next year to continue its work for Neurological Health Service Improvement.

The audience also heard from:

  • Gill Bedwell, Neurological Voice for the NNAG and NHS Forth Valley who highlighted the benefits and challenges of being a Neurological Voices representative.
  • Malcolm McLeod (NHS Forth Valley) who discussed the work of the NNAG in relation to gathering data to inform improvement work.
  • Callum Campbell (NHS Borders) who gave the perspective of an NHS Chief Executive Officer.
  • Craig Stockton who discussed the importance of involving the third sector.

Workshops were also held in the afternoon discussing specific conditions, functional symptoms, multidisciplinary team working and Neurological Voices.

The annual review document will be included here as soon as it is available.

National Neurology Advisory Group Update November 2013

The Annual Report 2013, is now in the process of being written. Consultation with NNAG members on the Draft will take place in late November 2013 and the report will go to design and print in December 2013.

The Operational Management Group and its Work task areas have been busy over the summer as work plans have been developed. A Learning and Sharing Event will take place the week beginning the 17 February 2014. The event will launch the Annual Report 2013; share learning and good practice models from the work carried out since July 2012; have table workshops looking at the proposed work for 2014 as outlined in the Annual Report 2013 and seek to promote conversation between all those involved in neurological health care in Scotland to encourage shared learning and development to improve services for all.

Work will also be undertaken to examine the Clinical Standards in relation to Functional Symptoms. Consideration will be given to whether or not they measure what they are supposed to. Other key areas of work include:

· Data and Audit which will include two pilot studies in NHS Greater Glasgow and Clyde (inpatients) and NHS Forth Valley (outpatients)

· A 2nd Patient Experience Survey it has been agreed that the development of a 2nd survey should go ahead

· NHS Boards Clinical Standards Improvement Plan Mid Year Review, with results published in the annual review

· A workforce Planning tool for measuring staff risk has been developed by Workforce planning in South East and Tayside (SEAT). There is work in progress to plan how this will be rolled out and implemented across all NHS Boards Neurology Departments/Services in Scotland.

The NNAG Community Website is now up and running with both a public and a membership area. Updates on the work of the NNAG and OMG and details of meetings are available. Click here to access the site.

National Neurological Advisory Group July 2013 Update

The most recent meeting of the National Neurological Advisory Group took place on 17 April and focused down to consider the work streams of the group. It has been agreed that these will be:

Person Centred - this group will audit pathways already out there for patients, professionals and their carers. This will be included in a mid Year Review of the NHS Neurological Improvement Plans in July 2013.

A second patient survey will also be considered in order to gather peoples experiences of service delivery.

Condition Specific– within this work stream there will be a commitment to work across the conditions in a co-ordinated way. The work stream will begin with MS and Parkinson's Disease in the 1st year as recommended by HIS at the end of the implementation phase.

Health and Social Care Integration (HSCI) will also be a focus and the Convener along with the Project Co-ordinator will speak with members of the NNAG / OMG and Neurological Voices to bring together individuals who can help shape work for this group.

Operational Management Group (OMG)

The OMG met recently and heard a number of presentations relating to patient and carer participation. Dr Jane Hopton, Strategic Planning, NHS Lothian presented the findings from the Patient Survey conducted by the Alliance. Jan Anderson, updated the group on Neurological Voices Activity and Patrick Mark, Neurological Voices Lothian fed back on NHS Lothian’s 1stNeurological Voices meeting.

Project Co-ordinator, Paula Aldin-Scott has also been busy setting up meetings, developing work plans, progressing the communication strategy and getting an engagement strategy out for consultation to the NNAG.

For further information contact Paula Aldin -Scott on 07734996210 -or email

National Neurological Advisory Group March Update

The NNAG Project Co-ordinator, Paula Aldin-Scott started her role in February 2013 and her first task was to prepare for the forthcoming NNAG meeting.

The NNAGmeeting was well attended with Neurological Voice Representatives speaking on behalf of patients and carers. The meeting focused down to consider the workstreams of the group, these are to be:

  • Person Centred
  • Condition Specific

The Recommendations from the HIS Neurological Services in Scotland Final Report July 2012 have been used to inform the development of these workstreams. Alliance Chair, Craig Stockton is taking up the role of Convener for the Person Centred Workstream and Vice Chair, Tanith Muller along with Christine Carlin from Alliance member organisation the MS Society, will be Joint Conveners of the Condition Specific Workstream. The Conveners along with the Project Co-ordinator will speak with members of both the NNAG and Neurological Voices to bring together individuals who can help take this work forward.

The Operational Management Group (OMG), chaired by Susan Walker from NHS Greater Glasgow and Clyde, has had a busy couple of months and have met twice this year so far. The initial focus of the OMG Sub Group was to agree a manageable workplan to help support the improvement of services and therein provide better outcomes for neurological patients and their unpaid carers. The workplan includes: regular reports to NNAG; review of NHS Board Plans; DCAQ; Data and Audit; staffing and the workforce; feedback systems; functional symptoms; and learning and sharing.

The OMG Sub Group has recently held its second meeting of the year. Covering two workplan areas they received presentations on: Highlights of the Progress NHS Boards have made and Meeting HIS Functional Symptoms Standards through Partnership Working. It was agreed that presentations on themes within the workplan for future meetings were valuable in creating discussion and learning within the group, that could be shared with colleagues in other services across neurology.

Both OMG Sub Group meetings were well attended and Neurological Voices were well represented.

The Project Co-ordinator has been out and about meeting people to help her build relationships, knowledge and support for the work of the NNAG, its OMG Sub Group and Workstreams.

For further information contact Paula Aldin -Scott on 07734996210 -or email