Members' news and events

edmesh invites you to a screening of Voices From the Shadows on 24 May 2012

edmesh invites you to a screening of Voices from the Shadows at Cineworld, Fountainpark, Edinburgh on Thursday 24th May at 2pm

This hour long award winning documentary is compelling and intensely moving and unveils the reality of people with M.E. and their carers.

edmesh are delighted to have Dr Vance Spence and Dr Neil Abbott from M.E.R.U.K. and the paediatric advisor to M.E.A., Dr Nigel Speight attending to take part in a Q&A session after the screening.

Refreshments will be provided and admission is free.

Please reserve your place now to avoid disappointment by either calling 0845 625 2025 or email.

Multidisciplinary Care Pathways in Motor Neurone Disease Study Day

A Study Day for Health and Social Care Professionals is being held on 22nd May 2012 at COSLA Conference Centre, Verity House, 19 Haymarket Yards, Edinburgh.

Places are allocated on a first come first served basis, so early application is advised.

Download a Booking Form here

For all enquiries please contact the Conference Organiser on 0141 945 1077

Brain Tumour UK and Joseph Foote Trust to join forces

On 1 April, the Joseph Foote Trust will be joining forces with us to create a new, larger Brain Tumour UK.

Brain Tumour UK is the UK-wide caring charity committed to fighting brain tumours and runs more support groups than any other brain tumour charity.

Despite 40 people being diagnosed every day in the UK with a primary brain tumour, only 2% of all cancer research funding in the UK goes to brain tumour research. And brain tumours now kill more children in the UK than leukaemia.

The Joseph Foote Trust was set up in memory of Andy Foote’s son Joe, who was diagnosed with a brain tumour in 2000 and who sadly died in 2007 at the age of 9.

The charity works mainly in the midlands and has been hugely successful in raising and investing vital funds for ground breaking brain tumour research at Nottingham University.

Joining our two brain tumour charities together will combine our respective strengths in fundraising and patient support programmes and intensify our commitment to funding research to expedite better diagnosis and treatments.

By consolidating our resources and experience, we will be able to make significant cost savings, while making a greater impact on even more people affected by brain tumours.

We will also have a stronger voice to speak to both the Government and the public. We believe that the new organisation will be more than simply the sum of its parts, and this promises a very exciting future for us.

Over the coming months we will create a new strategic plan with goals to grow our fundraising, research investment, support and campaigning and we will keep you updated on our progress.

If you have any questions please contact Moira Dennison

May is Action on Stroke Month - Sign Up Now

May 2012 marks Action on Stroke Month where this year The Stroke Association will be highlighting Life After Stroke issues.

We want to:

Make more people aware of the impact stroke has on stroke survivors and the challenges they face in their daily life

Challenge attitudes that little can be done for stroke survivors by celebrating their achievements and support for each other

With cuts to budgets beginning to bite, we want to campaign with you and others working in stroke to highlight the support stroke survivors need and are entitled to.

If you read Jennifer’s story, you will learn more about the impact a stroke can have on someone’s life and the need for support to be there when it is needed and for as long as it is needed.

Sign up!

Stay up to date with news from across the UK on what’s been happening in Action on Stroke Month by signing up to our newsletter.

Chest Heart & Stroke Scotland Launch New Website

Chest Heart & Stroke Scotland has launched a new website for unpaid stroke carers, families and friends of anyone affected by stroke illness. The site was developed in collaboration with CHSS, University of Edinburgh, National Advisory Committee for Stroke and Big Lottery Fund Scotland.

The wesite address is www.stroke4carers.org and the site is targeted at unpaid stroke carers, families and friends.

It has information, advice and support from the time of diagnosis to months or years later. Over 300 pages with easy to use interactive graphics, film clips and quizzes to explain a variety of difficult topics and give practical advice. Checklists and film clips are downloadable and can be shared with family and friends.